Many forms of childhood cancers have gone from being a death sentence to a curable disease. Thanks to advances in treatments, the overall survival rate for childhood cancers has increased from 10% a few decades ago to nearly 90% today. This means that by the year 2020, an estimated half a...
More info
Every month symbolizes a cause these days, and May is Brain Tumor Awareness month. Having a son with a brain tumor of course makes my perspective invalid. However, my friends have their own sad stories of loved ones lost to brain tumors, and the news is full of stories of brain tumor victims...
More info
Children with brain tumors that have failed to respond to treatment, or that have returned, will be able to enroll in a Phase 1 clinical trial evaluating an immunotherapy that Apexigen developed. The trial, a collaboration between Apexigen and the Pediatric Brain Tumor Consortium, will evaluate...
More info
Clay came home from National Rehabilitation Hospital in March. He was meeting all their goals for mobility and physical therapy, but still not thriving. They (and we) feared that if he stayed there any longer he would never want to leave…
More info
Clay hams it up with one of the chaplain’s who played D.J. for a trivia game at Children’s Hospital. It is a good sign that Clay called into the hotline, and won a prize or two for identifying the correct song. He is now settled into “rehab” on the same campus as...
More info
The international community of pediatric neuro-oncologists is having a “Denver Family Day” in June which provides the opportunity to hear from brain tumor experts who will discuss innovations in brain tumor treatments.
More info
When you are used to having a sibling around at home, used to the constant annoying yet loving jokes, teasing and used to their voice echoing through the house, you don’t really realize what it’s like not to have them around. Ever since about two weeks ago, Clay has been in the hospital and is...
More info
When Clay was first diagnosed with a brain tumor at the age of 3, I started a blog called “Following Clay.” These were in the “blog” days — what I’ve come to think of as the pre social-media days – before posts were short and got a “like” or a smile emoji.
More info
If anyone is in the NJ area, here is a 5K that another fundraising group is doing to raise money for pediatric brain tumor research.
More info
Using rare tumor tissue specimens, researchers recently learned that an important protein that controls gene expression, known as histone H3, is mutated in up to 80% of diffuse midline gliomas.
More info